Goldenhar Family Support Group (UK) : Goldenhar Family Support Group (UK)

The World of Anna Jones

Anna Jones is an intelligent and spirited girl of 15, whose everyday experiences of growing up are overshadowed by a rare condition called Goldenhar syndrome. While Anna approaches her life with humour and determination, she is haunted by the inescapable fact that she looks a little different from other girls. VISIT ANNAS BLOG

Supporting families throughout the U.K. who face the day to day challenges of supporting relatives with Goldenhar Syndrome and related problems, eg. Hemifacial Microsomia and Microtia.

Welcome to the Goldenhar Family Support Website

Welcome to the Goldenhar Family Support Website. The site has been set up to support families throughout the U.K. who face the day to day challenges of supporting relatives with Goldenhar Syndrome and related problems, eg. Hemifacial Microsomia and Microtia.

The site is written and run by families who have first hand experience of this medical condition and are NOT medical professionals.

How to Donate

Donations allow us to help families and children who have been affected by Goldenhar Syndrome. Because of the lack of information about Goldenhar, parents can often feel very isolated and anxious in the early days and we are here to help and support those families.

Your contribution is very valuable to us and we thank you for your support.

HOW TO DONATE

New Families

If your child has just been diagnosed with Goldenhar Syndrome then please do not despair. We have all been in your position and someone will be able to talk to you to give you practical advice.

We will send you information about the condition and you will have someone to talk to. If you join as a member you will also be invited for our family days where you can meet dozens of other families who have been affected by Goldenhar Syndrome.

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