• The World of Anna Jones

    Anna Jones is an intelligent and spirited girl of 15, whose everyday experiences of growing up are overshadowed by a rare condition called Goldenhar syndrome. While Anna approaches her life with humour and determination, she is haunted by the inescapable fact that she looks a little different from other girls. VISIT ANNAS BLOG

  • The Golden Ball Fundraiser

    Please click below for more details about this fundraising event. CLICK HERE


Supporting families throughout the U.K. who face the day to day challenges of supporting relatives with Goldenhar Syndrome and related problems, eg. Hemifacial Microsomia and Microtia.

Latest from the Blog

Morgan's Story

Thank God Morgan’s mum didn’t listen to the doctors: First she was offered an abortion, then she was told her tiny son was unlikely to live By AMANDA REVELL WALTON Like thousands of mothers...

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Future Fundraising Events

Broad Town Big Gig 2012 - Saturday 1st of September, 2012 Featuring Josh Kumra, Coldplace, Queen of Hearts, Teddy White Band, Young Blood, Ali Finneran, Bateleurs, Theo Altieri, Kolakoka, The Itchy Feet Band, Atari Pilot, Danny McEvoy, The BJ Big Band Charity Ghost Hunt at Castle Keep with Alone...

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Recent Work




Goldenhar UK Support Group Registered Charity 1099642 Like us on Facebook Follow us on Twitter Find out how to Contact Us