7th JUNE 2016
The GOLDEN GIG, Level 3, Swindon
BRITISH 10K RUN, London
The site is written and run by families who have first hand experience of this medical condition and are NOT medical professionals… Read more
Donations allow us to help families and children who have been affected by Goldenhar Syndrome… Read more
Goldenhar Syndrome is an ‘umbrella’ term for a wide range of bone abnormalities affecting the face and sometimes the vertebrae. It has been proven not to be genetic… Read more
Our family days are our main event. Each year our members get together...
Our family events have become vital part of the support network for ch...
Finding our your new born child has Goldenhar can be a worrying time f...