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WELCOME TO

GOLDENHAR UK

EVENTS COMING UP

SATURDAY 31ST AUGUST

Broadtown's The BIG GIG, Broadtown

SUNDAY 19TH OCTOBER

First Goldenhar FOOTBALL MATCH, Birmingham

SATURDAY 26TH OCTOBER

The Annual GOLDEN BALL, Swindon

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Press Play

“Being different is hard, but being different is what makes me, me”

Welcome To Goldenhar UK

The site is written and run by families who have first hand experience of this medical condition and are NOT medical professionals… Read more

How To Donate

Donations allow us to help families and children who have been affected by Goldenhar Syndrome… Read more

What Is Goldenhar Syndrome?

Goldenhar Syndrome is an ‘umbrella’ term for a wide range of bone abnormalities affecting the face and sometimes the vertebrae. It has been proven not to be geneticRead more

Our Family Days

Our family days are our main event. Each year our members get together...

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Support For Children

Our family events have become vital part of the support network for ch...

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New Families

Finding our your new born child has Goldenhar can be a worrying time f...

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