New Families

Finding our your new born child has Goldenhar can be a worrying time for parents.

If your child has just been diagnosed with Goldenhar Syndrome then please do not despair. We have all been in your position and someone will be able to talk to you to give you practical advice.

We will send you information about the condition and you will have someone to talk to. If you join as a member you will also be invited for our family days where you can meet dozens of other families who have been affected by Goldenhar Syndrome.