“Being different is hard, but being different is what makes me, me”

Welcome To Goldenhar UK

The site is written and run by families who have first hand experience of this medical condition and are NOT medical professionals… Read more

How To Donate

Donations allow us to help families and children who have been affected by Goldenhar Syndrome… Read more

What Is Goldenhar Syndrome?

Goldenhar Syndrome is an ‘umbrella’ term for a wide range of bone abnormalities affecting the face and sometimes the vertebrae. It has been proven not to be genetic… Read more